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<title>El tratamiento de HPN de Apellis Pharmaceuticals recibe la designaci&#243;n Fast Track</title>
<link>http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1199</link>
<description>&lt;p style=&quot;text-align: justify;&quot;&gt;&lt;span style=&quot;font-family: arial, helvetica, sans-serif; font-size: medium; color: #000000;&quot;&gt;Este medicamento est&amp;aacute; dise&amp;ntilde;ado para pacientes que experimentan hem&amp;oacute;lisis y requieren transfusiones de gl&amp;oacute;bulos rojos incluso mientras toman Eculizumab.&lt;/span&gt;&lt;/p&gt;
&lt;p&gt;&lt;span&gt;&amp;nbsp;&lt;/span&gt;&lt;/p&gt;</description>
<dc:subject>NOTICIAS</dc:subject>
<category><![CDATA[NOTICIAS]]></category>
<dc:creator></dc:creator>
<dc:date>2017-11-01T00:00:00+01:00</dc:date></item>
<item rdf:about="http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1218">
<title>NOTICIA BOX 1</title>
<link>http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1218</link>
<content:encoded><![CDATA[]]></content:encoded>
<dc:subject>HPN</dc:subject>
<category><![CDATA[HPN]]></category>
<dc:creator></dc:creator>
<dc:date>2017-10-25T00:00:00+01:00</dc:date></item>
<item rdf:about="http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1219">
<title>NOTICIA BOX 2</title>
<link>http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1219</link>
<content:encoded><![CDATA[]]></content:encoded>
<dc:subject>NOTICIAS</dc:subject>
<category><![CDATA[NOTICIAS]]></category>
<dc:creator></dc:creator>
<dc:date>2017-10-25T00:00:00+01:00</dc:date></item>
<item rdf:about="http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1217">
<title>Loter&#237;a de Navidad :D</title>
<link>http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1217</link>
<description>&lt;p&gt;&lt;span style=&quot;font-family: arial, helvetica, sans-serif; font-size: medium; color: #000000;&quot;&gt;Ya tenemos aqu&amp;iacute; la Loter&amp;iacute;a de Navidad HPN.&amp;nbsp;Muchas gracias por vuestra colaboraci&amp;oacute;n y suerte a todos :)))&lt;/span&gt;&lt;/p&gt;</description>
<dc:subject>HPN</dc:subject>
<category><![CDATA[HPN]]></category>
<dc:creator></dc:creator>
<dc:date>2017-09-18T00:00:00+01:00</dc:date></item>
<item rdf:about="http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1216">
<title>Revista HPN N&#250;mero 7</title>
<link>http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1216</link>
<description>&lt;p&gt;&lt;span style=&quot;font-family: arial, helvetica, sans-serif; font-size: medium; color: #000000;&quot;&gt;Ya tenemos la &lt;strong&gt;nueva&lt;/strong&gt; &lt;strong&gt;Revista n&amp;ordm; 7 &lt;/strong&gt;de la asociaci&amp;oacute;n de pacientes afectados por HPN en Espa&amp;ntilde;a. Queremos compartir con todos vosotros todas las novedades, acciones la asociaci&amp;oacute;n, experiencias de afectados y otras noticias de inter&amp;eacute;s.&amp;nbsp;&lt;/span&gt;&lt;/p&gt;</description>
<dc:subject>PRENSA | MULTIMEDIA</dc:subject>
<category><![CDATA[PRENSA | MULTIMEDIA]]></category>
<dc:creator></dc:creator>
<dc:date>2017-07-04T00:00:00+01:00</dc:date></item>
<item rdf:about="http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1215">
<title>Concierto ben&#233;fico de Crist&#243;bal P&#233;rez</title>
<link>http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1215</link>
<description>&lt;p&gt;&lt;span style=&quot;font-family: arial, helvetica, sans-serif; font-size: medium; color: #000000;&quot;&gt;Concierto ben&amp;eacute;fico&amp;nbsp;de guitarra y guitarra arpa de&amp;nbsp;&lt;strong&gt;Crist&amp;oacute;bal P&amp;eacute;rez&lt;/strong&gt;&amp;nbsp;el cual nos deleit&amp;oacute; con su m&amp;uacute;sica e interpretaci&amp;oacute;n&amp;nbsp;con un carisma arrollador que nos hizo vibrar a todos los asistentes.&lt;/span&gt;&lt;/p&gt;</description>
<dc:subject>HPN</dc:subject>
<category><![CDATA[HPN]]></category>
<dc:creator></dc:creator>
<dc:date>2017-06-23T00:00:00+01:00</dc:date></item>
<item rdf:about="http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1214">
<title>Recomendaciones para la b&#250;squeda de soluciones en el &#225;mbito de las EERR</title>
<link>http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1214</link>
<description>&lt;p&gt;&lt;span style=&quot;font-family: arial, helvetica, sans-serif; font-size: medium; color: #000000;&quot;&gt;&lt;strong&gt;Nueva&lt;/strong&gt;&amp;nbsp;guia de 'Recomendaciones para la b&amp;uacute;squeda de soluciones en el &amp;aacute;mbito de las Enfermedades Raras' -&amp;nbsp;&lt;strong&gt;JUNIO 2017.&lt;/strong&gt;&lt;/span&gt;&lt;/p&gt;</description>
<dc:subject>NOTICIAS</dc:subject>
<category><![CDATA[NOTICIAS]]></category>
<dc:creator></dc:creator>
<dc:date>2017-06-19T00:00:00+01:00</dc:date></item>
<item rdf:about="http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1213">
<title>Proyecto 'Diseasemaps'</title>
<link>http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1213</link>
<description>&lt;p&gt;&lt;span style=&quot;font-family: arial, helvetica, sans-serif; font-size: medium; color: #000000;&quot;&gt;Proyecto para conectar y ayudar a personas de todo el mundo con enfermedades poco frecuentes como HPN.&lt;/span&gt;&lt;/p&gt;</description>
<dc:subject>NOTICIAS</dc:subject>
<category><![CDATA[NOTICIAS]]></category>
<dc:creator></dc:creator>
<dc:date>2017-05-16T00:00:00+01:00</dc:date></item>
<item rdf:about="http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1212">
<title>Concierto ben&#233;fico a favor de la investigaci&#243;n de HPN en Barcelona</title>
<link>http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1212</link>
<description>&lt;p style=&quot;text-align: justify;&quot;&gt;&lt;span style=&quot;color: #000000; font-family: arial, helvetica, sans-serif; font-size: medium;&quot;&gt;El concierto se celebrar&amp;aacute; el pr&amp;oacute;ximo 5 de mayo en el Reial Cercle Art&amp;iacute;stic de Barcelona&lt;/span&gt;&lt;/p&gt;</description>
<dc:subject>EVENTOS</dc:subject>
<category><![CDATA[EVENTOS]]></category>
<dc:creator></dc:creator>
<dc:date>2017-04-20T00:00:00+01:00</dc:date></item>
<item rdf:about="http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1210">
<title>Danza y Ritmo - Solidaridad con HPN</title>
<link>http://www.hpne.org/portal1/m_item-detail.asp?ContentId=1210</link>
<description>&lt;p style=&quot;text-align: justify;&quot;&gt;&lt;span style=&quot;color: #000000; font-family: arial, helvetica, sans-serif; font-size: medium;&quot;&gt;31 de marzo 2017 - Diputaci&amp;oacute;n de C&amp;oacute;rdoba - 21H&amp;nbsp;&lt;/span&gt;&lt;/p&gt;</description>
<dc:subject>EVENTOS</dc:subject>
<category><![CDATA[EVENTOS]]></category>
<dc:creator></dc:creator>
<dc:date>2017-03-24T00:00:00+01:00</dc:date></item>
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